The MyData4Pandemics is a new thematic group part of MyData that came to fruition with the advent of the shocks, changes, and challenges in society from the coronavirus. Below you can find our past activities, and ongoing vision for a human-centric data solution for facing the pandemic, and how you can help achieve it!
MyData-4-Pandemics is the follow up of several months of consultation within the MyData community.
Our mission is to maximize the involvement of citizens during pandemics by enabling them to adapt their behaviour and to share their data in trust with authorities. By empowering citizens, we want to minimize the negative impacts of pandemics on the economy, health and education while preserving human rights such as data privacy, freedom of movement, equitable access to safe care….
This requires new approaches at political, scientific, technological and individual levels.
There is no need to trade data privacy in the name of the good during cross border health threats. Existing and emerging technologies, based on the MyData Operators model, allow to develop and deploy individual centric services that support citizens and decision makers during crisis:
Today, all solutions – such as mobility restrictions, contact tracing, or equitable access to treatment – are problem centric and designed FOR the individual rather than BY the individual; they have shown their limitations and negative impacts. We call for decision makers and politicians to support development of individual centric approaches (BY the individuals) in support and complement to problem centric solutions.
While COVID-19 might be under control by Autumn 2021, experts, predict new outbreaks, more lethal, more contagious than SARS-CoV-2. The first priority in case of infectious disease outbreaks is medical countermeasures (MCM). The second priority is to develop non-pharmaceutical interventions (NPI). To ensure effective preparedness to pandemics we believe the 4 elements below need to be respected
Concretely, MyData-4-Pandemics proposes to develop Individual Centric Advisory and Warning Services on top of existing/emerging MyData operators, building on MyData principles.
2 use cases:
A set of technology services based on MyData operators
Our community has experts of varying backgrounds, interests, and degrees of experience. We aim to support and facilitate an interdisciplinary and safe space where everyone can share their thoughts, views, and ideas when working towards our vision of human-centric pandemic data-management. In particular, we are looking for people with the following skills, willingness to participate, and motivation to donate their time doing:
Join MyData Global
If you as an individual believe in these efforts and wish to support MyData, join MyData Global as an individual member, the membership fee model for individuals is “pay-what-you-want” and we welcome with enthusiasm all kinds of contributions! In addition, if you represent a company or an organisation, we need your support and want to collaborate! Join MyData Global as an organisational member and get in touch with general manager Teemu Ropponen, firstname.lastname@example.org, to plan exactly how we can support each other through and during this time.
Our MyData Slack channel is open for all interested persons to join
How to join our Slack channel:
Or send us an email to pandemics[at]mydata.org
If you would like to know more about what we are doing, or would like to give feedback about a particular activity, please fill out the form and someone from the MyData4Pandemics thematic leadership group will get back to you. Anonymous feedback is also possible. All feedback is available to the MyData Global staff as well as the MyData4Pandemics leadership.
The series of calls took place between 25 March and 4 June 2020. Altogether, 8 calls were organised with over 30 initiatives presented.
We, the MyData community, are a group of entrepreneurs, innovators, developers, designers, activists, lawyers, ethicists, social scientists and more – from companies, public sector, civil society, and academia.
We are currently working around the globe and around the clock for human-centric, effective, and ethical sharing of personal data to combat the COVID-19 pandemic. This is our promise: we will …
The series of the calls took place between 25 March and 4 June. Altogether, 8 calls were organised with over 30 initiatives presented. We are taking break for summer, but you can check the recaps and recordings below and join mydata.org/slack #coronadata channel for further discussions.