Events
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MyData hosts online and in-person events – join to learn, contribute, and network! This is our old event page, please remove it from your bookmarks and visit https://mydata.org/mydata-events/ instead.
Past events
Deprecated shortcode. Use Let’s build on the good energy of the Connecting MyData Champions – health and wellness (held in Dec 2023). Based on the event and discussions, there is clearly a need to act more – and thus we invite you to meet monthly in 2024! WHY: join forces to ensure patients’ and citizen’s voices concerning health data are heard WHAT: shape the vision described in the individual-centric EHDS (European Health Data Space) blog post into CONCRETE PROPOSALS that WHEN: once 1 month, first Wednesday of the month, from 16:00to 17:30 EET HOW: The agenda of the first meeting on Feb 7, 2024 If you’d like to know more, please contact: The best way to engage is via MyData Slack / #health-data channel Join the Slack at – www.mydata.org/slack/ This Town Hall will report on collaborative work with the community to refine governance reforms that will be presented for adoption at the March 27 General Meeting. This collaborative work has taken place in the #governance-reforms slack channel. It has built on the draft reforms that were presented to the 2023 Autumn General Meeting, including this summary presentation and Draft Board Terms of Reference. The Town Hall will provide a brief progress report, with ample time for discussion and questions. Materials will be circulated in advance. Starting from last November, we’ve invited members to discuss on how to strengthen the governance structure to make MyData Global more efficient and impactful. The governance reform focuses on four issues: The next event in the monthly series on patient-centric health data operators & solutions is on March 6, 2024. This event has more non-European perspectives than the previous events. This series of monthly meetings and a parallel writing process aim to showcase and describe MyData operators’ role with regard to health data and the European health data space. As an end-product, we envision publishing a white paper on health data operators in Q4/2024. Tentative agenda on 6 March (TBC) GMT 3:20 pm – Conclusion and next steps Join the world’s leading event on data spaces! The Data Spaces Symposium is set to reconvene at Darmstadtium, Frankfurt Region this year. Organized by the Data Spaces Support Centre (DSSC) and the Data Spaces Business Alliance (DSBA), this symposium is a pivotal gathering for those at the forefront of data space innovation and strategy. It serves as a platform to showcase the latest market-ready use cases, advanced technology solutions for existing and emerging data spaces, and the essential work done by the DSSC in crafting a foundational blueprint for common European data spaces, aligning with the European Data Strategy. The annual conference of the Data Spaces Support Centre takes place during the Day 3 of the Symposium. Join us to learn about the newly published Blueprint v1.0, and engage with the data space experts and enablers of data space initiatives! Please visit the official site for the full programme and registration! The Spring General Meeting 2024 will take place online on 27 March 2024 at 13.00 UTC+0. The general meeting is open to all, while only MyData Global membership are entitled to vote during the meeting. Time: 27 March 2024, at 13.00 UTC+0. Online meeting: The general meetings are held ‘online first’ in Zoom. No registration: No prior registration is needed. The link and password to join the Zoom call will be sent to all members before the meeting. Voting codes: All members in good standing as of 26 February 2024 will receive their voting code via email before the meeting. The meeting is organised according to the association’s bylaws. Voting codes will be sent no later than 24 hours before the general meeting to those members who are in good standing 30 days before the general meeting. The meeting agenda consists of the points mandated by bylaws Section 10.4 “Agenda for General Meetings”, possible proposed amendments to bylaws and other issues that members want to raise to be discussed. The detailed agenda and all materials can be found at https://mydata-global.org/general-meeting-spring2024. 1. Opening the general meeting Online participation: The password to join the Zoom call and voting codes will be sent to all members in good standing as of 26 February 2024 before the meeting. General best practices: More discussions on the agenda take place in our Slack (join here), at the #general-meeting channel. Welcome! On Thursday 28th March, we will be holding the monthly operators community meeting, with a focus on interoperability. This free Zoom event is open to all. Speakers will include: There will be a Q&A and discussion with the speakers afterwards. We have sent invites to our operators mailing lists – If you have any questions or would like to request an invite please contact alex.bowyer@mydata.org. Register in advance for this meeting: After registering, you will receive a confirmation email containing information about joining the meeting. We hope you will join us. Please pass this on to anyone who might be interested.Patient-centric health data operators: delivering solutions that empower patients to be in control of their data
(1) each of us can use to support their own organisation,
(2) we can use as a community to influence regulators and
(3) can form the basis of funding to develop solutions.
– Isabelle de Zegher
– Teemu RopponenMyData Global Town Hall: Governance Reform
The meeting invite is sent to all members via email.
Background:
Patient-centric Health Data Operators // March event
If you missed the February event, you can watch the recording here (password: xe+PL64f)
If you want to know more, please contact isabelle.dezegher@mydata.org and(or teemu@mydata.org, or through the Slack #health-data channel
GMT 2:00 pm – Introduction & status of white paper (Teemu , Isabelle)
GMT 2:10 pm – Discussion: problem and vision (Isabelle, Alex)
* Benefits/ incentives
* Challenges toward implementation
GMT 2:50 pm – Point of view from European Commission on a patient centric EDHS – (Malte Beyer-Katzenberger, EC DG Connect)
GMT 3:00 pm – We Are and SOLID Platform (Elfi Goesaert, VITO)
GMT 3:10 pm – Utilizing MyData for Preventive Healthcare Services. (Kim Naheasal, SNPLab)Data Spaces Symposium 2024
Spring General Meeting 2024
Agenda
2. Calling the meeting to order
2.1. Chair
2.2. Secretary, Tellers and Examiners of the minutes and other roles
2.3. Notice and attendees present in the meeting
3. Approving the agenda for the meeting
4. Governance Reforms
5. Bylaws amendments
5.1. Amendment to Section 10.5 Voting in General Meetings
5.2. Governance Reforms requiring amendment to bylaws
5.3. Finnish translation of the bylaws
6. Internal Regulations
6.1 Internal regulations for the Board and specific Board roles
7. Mandatory tasks of the spring general meeting
7.1. Presentation of the annual report by the Board
7.2. Presentation of the performance report by the Steering Committee
7.3. Presentation and approval of financial reports and relief of responsibility
8. Any other business
9. Closing the meeting
Practicalities
Operators community meeting: Interoperability
https://us02web.zoom.us/meeting/register/tZYlduCqrTwqG9N9DkqkxuQD_lbw9FkQ5giS
You can also access recordings and slides of our past events in our Event Archive (members-only, click here to join).