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Home Past events

Past MyData events

Browse our archive of events from 2015 – October 2024.

For events in 2024 and beyond, please go here.

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Human-centric Health Data Operators and Solutions / April edition

Apr32024
Meeting | Online event | Webinar
health-8148390_1280

This event has more non-European perspectives than the previous events, with Jim St. Clair, Berrin Serdar and Elfi Goesart presenting.

REGISTER HERE

This series of monthly meetings and a parallel writing process aim at showcasing and describing the role of MyData operators with regard to health data and the European health data space. As an end-product, we envision a white paper on health data operators to be published in Q4/2024.

If you missed the March event, you can watch the recording here.

If you want to know more, please contact isabelle.dezegher@mydata.org and(or teemu@mydata.org, or through the Slack #health-data channel.

Operators community meeting: Interoperability

Mar282024
Community meeting | MyData webinar series | Online event | Webinar
MyData Global logo

On Thursday 28th March, we will be holding the monthly operators community meeting, with a focus on interoperability. This free Zoom event is open to all.

Speakers will include:

  • Yan Minagawa of Element.io talking about how the Matrix protocol is used in the public sector in Germany
  • David Alexander of Mydex CIC talking about their work in real-world interoperability in the UK.
  • Iain Henderson of DataPal and JLINC Labs with a functioning demo of how customer-controlled personal data can be used in Salesforce via the JLINC protocol.

There will be a Q&A and discussion with the speakers afterwards.

We have sent invites to our operators mailing lists – If you have any questions or would like to request an invite please contact alex.bowyer@mydata.org.

Register in advance for this meeting:
https://us02web.zoom.us/meeting/register/tZYlduCqrTwqG9N9DkqkxuQD_lbw9FkQ5giS

After registering, you will receive a confirmation email containing information about joining the meeting.

We hope you will join us. Please pass this on to anyone who might be interested.

Spring General Meeting 2024

Mar272024
General Meeting | Main events | Meeting
Membership

The Spring General Meeting 2024 will take place online on 27 March 2024 at 13.00 UTC+0. The general meeting is open to all, while only MyData Global membership are entitled to vote during the meeting.


Time: 27 March 2024, at 13.00 UTC+0.

  • See your local time here
  • Add to your calendar here

Online meeting: The general meetings are held ‘online first’ in Zoom.

No registration: No prior registration is needed. The link and password to join the Zoom call will be sent to all members before the meeting.

Voting codes: All members in good standing as of 26 February 2024 will receive their voting code via email before the meeting.

The meeting is organised according to the association’s bylaws. Voting codes will be sent no later than 24 hours before the general meeting to those members who are in good standing 30 days before the general meeting.

The meeting agenda consists of the points mandated by bylaws Section 10.4 “Agenda for General Meetings”, possible proposed amendments to bylaws and other issues that members want to raise to be discussed.

The detailed agenda and all materials can be found at https://mydata-global.org/general-meeting-spring2024.


Agenda

1. Opening the general meeting
2. Calling the meeting to order
     2.1. Chair
     2.2. Secretary, Tellers and Examiners of the minutes and other roles
     2.3. Notice and attendees present in the meeting
3. Approving the agenda for the meeting
4. Governance Reforms
5. Bylaws amendments
     5.1. Amendment to Section 10.5 Voting in General Meetings
     5.2. Governance Reforms requiring amendment to bylaws
     5.3. Finnish translation of the bylaws
6. Internal Regulations
     6.1 Internal regulations for the Board and specific Board roles
7. Mandatory tasks of the spring general meeting
     7.1. Presentation of the annual report by the Board
     7.2. Presentation of the performance report by the Steering Committee
     7.3. Presentation and approval of financial reports and relief of responsibility
8. Any other business
9. Closing the meeting


Practicalities

Online participation: The password to join the Zoom call and voting codes will be sent to all members in good standing as of 26 February 2024 before the meeting.

General best practices:

  • Please keep your microphone muted by default to avoid potential sound issues.
  • The meeting is moderated by the Chair.
  • If you’d like to make a comment or proposal, please indicate this by raising your hand in Zoom
  • NB. If you are dialled into the meeting using a phone number, you will not be able to raise your hand or participate in indicative voting. 

More discussions on the agenda take place in our Slack (join here), at the #general-meeting channel. Welcome!

Data Spaces Symposium 2024

Mar122024
Mar142024
Conference | Main events
Screenshot 2024-02-16 at 11.30.52

Join the world’s leading event on data spaces! The Data Spaces Symposium is set to reconvene at Darmstadtium, Frankfurt Region this year. Organized by the Data Spaces Support Centre (DSSC) and the Data Spaces Business Alliance (DSBA), this symposium is a pivotal gathering for those at the forefront of data space innovation and strategy. It serves as a platform to showcase the latest market-ready use cases, advanced technology solutions for existing and emerging data spaces, and the essential work done by the DSSC in crafting a foundational blueprint for common European data spaces, aligning with the European Data Strategy.

The annual conference of the Data Spaces Support Centre takes place during the Day 3 of the Symposium. Join us to learn about the newly published Blueprint v1.0, and engage with the data space experts and enablers of data space initiatives!

Please visit the official site for the full programme and registration!

Patient-centric Health Data Operators // March event

Mar62024
Meeting | Online event | Webinar
health-8148390_1280

The next event in the monthly series on patient-centric health data operators & solutions is on March 6, 2024.  This event has more non-European perspectives than the previous events.

This series of monthly meetings and a parallel writing process aim to showcase and describe MyData operators’ role with regard to health data and the European health data space. As an end-product, we envision publishing a white paper on health data operators in Q4/2024.

REGISTRATION


If you missed the February event, you can watch the recording here (password: xe+PL64f)

If you want to know more, please contact isabelle.dezegher@mydata.org and(or teemu@mydata.org, or through the Slack #health-data channel

Tentative agenda on 6 March (TBC)
GMT 2:00 pm – Introduction & status of white paper (Teemu , Isabelle)
GMT 2:10 pm – Discussion: problem and vision (Isabelle, Alex)
  * Benefits/ incentives
  * Challenges toward implementation
GMT 2:50 pm – Point of view from European Commission on a patient centric EDHS – (Malte Beyer-Katzenberger, EC DG Connect)
GMT 3:00 pm – We Are and SOLID Platform (Elfi Goesaert, VITO)
GMT 3:10 pm – Utilizing MyData for Preventive Healthcare Services. (Kim Naheasal, SNPLab)

GMT 3:20 pm – Conclusion and next steps

MyData Global Town Hall: Governance Reform

Feb212024
Main events | Meeting | Online event
Communitymeeting
Photo by Sigmund on Unsplash

This Town Hall will report on collaborative work with the community to refine governance reforms that will be presented for adoption at the March 27 General Meeting.

This collaborative work has taken place in the #governance-reforms slack channel. It has built on the draft reforms that were presented to the 2023 Autumn General Meeting, including this summary presentation and Draft Board Terms of Reference. 

The Town Hall will provide a brief progress report, with ample time for discussion and questions. Materials will be circulated in advance.

The meeting invite is sent to all members via email.

Background:

Starting from last November, we’ve invited members to discuss on how to strengthen the governance structure to make MyData Global more efficient and impactful. The governance reform focuses on four issues:

  • Criteria and profile for recruiting new board members
  • Board member terms and elections/appointments  
  • Accountability mechanisms between the board, staff, and general membership (including mechanisms for removing board members or voiding board decisions)
  • Representation and empowerment of regional hubs

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