MyData and COVID-19: for better, human-centric data-based response to the crisis

MYDATA COVID-19 RESPONSE INITIATIVES

It’s beyond question that we need data to combat the pandemic.

The questions how we should get it and use it, and who exactly this “we” should be, remain open. MyData offers an approach to answer these questions in concrete ways that preserve the basic, humane values that we all as human beings and citizens of this globe share.

We, the MyData community, are a group of entrepreneurs, innovators, developers, designers, activists, lawyers, ethicists, social scientists and more – from companies, public sector, civil society, and academia.

We are currently working around the globe and around the clock for human-centric, effective, and ethical sharing of personal data to combat the COVID-19 pandemic. This is our promise: we will …

  • CONNECT: facilitate and coordinate a platform where like-minded people, organisations, and initiatives can find each other, across the world – to enhance collaboration, avoid duplication of efforts
  • BUILD: create technical solutions for effective data sharing and vetting for quality and reliability
  • GUIDE: supply governance and ethics guidance and frameworks for human-centric data sharing and use according to the MyData principles
  • ADVOCATE: influence upcoming regulation globally on how to incorporate the human-centric approach to data use and sharing
  • THINK: publish on the societal implications of different kinds of data sharing and use.

Join our bi-weekly MyData vs. COVID-19 calls to #MakeItHappen and #MakeItRight 

The series of the calls took place between 25 March and 4 June. Altogether, 8 calls were organised with over 30 initiatives presented. We are taking break for summer, but you can check the recaps and recordings below and join mydata.org/slack #coronadata channel for further discussions. 

Join the Vision & roadmap workshop by the proposed MyData4COVID19 Thematic group on 26 June, 2-5 PM CEST. (Registration on the right ->) 

The aim of the workshop is to shape concrete deliverables for the next six months building on all the work done across the other Thematic Groups. This is about consolidation and promoting MyData approach & values in the context of COVID-19. 

If you plan participate in the workshop (register first), we strongly recommend you the following pre-reads:

  • Introduction to the proposed MyData4COVID19 Thematic Group [ref coming soon] – A MUST!
  • Theory of Change – COVID related [ref]
  • Corona Project Management team: Projects – Trello Board [ref
  • Human-centric Data Platform for managing COVID-19 pandemic:
    • EIT Digital proposal presentation [ref]
    • White Paper (draft) [ref]
    • Blog post on Data Commons Prototype – Iain Henderson [ref]

WORKSHOP REGISTRATION FORM

Register here to the MyData4COVID19 Thematic Group Vision & Roadmap workshop 2, which takes place on Friday, 26 June 2-5 PM CEST

Check below for resources:

  • Recaps from the calls:
    • MyData vs COVID-19 Vol.5: Smooth Recovery-Immunity Passports (22 April) here
    • MyData vs COVID-19 Vol.4: Contact Tracing (15 April) here
    • MyData vs COVID-19 Vol.3 (8 April) here
    • MyData vs COVID-19 Vol.2 (1 April) here
    • MyData vs COVID-19 Vol.1 (25 March) here

Four ways you can help:

We’d like to invite you and your colleagues to get involved and contribute to the MyData community response to COVID-19:

  1. Engage with the community: Join the #coronadata channel in MyData Slack workspace to engage with the vibrant community of thinkers and doers.
  2. Keep up-to-dateTune in for the latest developments in the MyData response to COVID-19 biweekly on Thursdays at 3pm CET via Zoom & streamed on our Twitter. Catch up by checking out the recordingslides, and recap posts published above.
  3. Share and learn about (your) COVID-19 appsJoin this Trello board to view and add information about different types apps in any phase of development.
  4. Join MyData Global: If you as an individual believe in these efforts and wish to support MyData, join MyData Global as an individual member, the membership fee model for individuals is “pay-what-you-want” and we welcome with enthusiasm all kinds of contributions! In addition, if you represent a company or an organisation, we need your support and want to collaborate! Join MyData Global as an organisational member and get in touch with general manager Teemu Ropponen, teemu@mydata.org, to plan exactly how we can support each other through and during this time.

Recordings of the MyData vs. COVID-19 calls 

MyData vs. COVID-19 call #7

MyData vs. COVID-19 call #8

MyData vs. COVID-19 call #5

MyData vs. COVID-19 call #6

MyData vs. COVID-19 call #3

MyData vs. COVID-19 call #4

MyData vs. COVID-19 call #1

MyData vs. COVID-19 call #2