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Effective Data Solidarity requires symmetry in human digital agency and a social license

2 Sep 2024 · News · data intermediaries, data interoperability, data quality, data solidarity, fair data economy, health

We believe that 3 pillars are required in Healthcare to support a FAIR data economy: Data Quality, Data Interoperability and Data Solidarity. Two previous blogs describe the first 2 pillars. […]

As a patient, the main reason to be in charge of my health data is to ensure its QUALITY

27 May 2024 · Update · EHDS, health, intermediaries

Patients – and citizens – should be in charge of their data to ensure correctness, completeness and accuracy, optimizing continuity of care from their providers and effective generation of datasets […]

EU Health Data Space must be individual-centric to benefit all stakeholders 

13 Dec 2023 · Update · EHDS, health, intermediary

To benefit all stakeholders and ensure green digital innovation, implementation of the European Health Data Space must focus on individual health records. As a citizen and a patient, would you […]

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