MyData
We believe that 3 pillars are required in Healthcare to support a FAIR data economy: Data Quality, Data Interoperability and Data Solidarity. Two previous blogs describe the first 2 pillars. This blog is focusing on the third pillar: Data Solidarity. In a previous blog on health data quality we described the importance to provide citizens […]
Patients – and citizens – should be in charge of their data to ensure correctness, completeness and accuracy, optimizing continuity of care from their providers and effective generation of datasets for public health innovation & policy-making. In a previous blog post arguing for an individual-centric European Health Data Space (EHDS), we presented the comments from […]
To benefit all stakeholders and ensure green digital innovation, implementation of the European Health Data Space must focus on individual health records. As a citizen and a patient, would you agree to share your data to support the “common good”? Absolutely yes, would say most of us. As a patient with serious medical conditions, would […]